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April 29, 2023 10:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
January 19, 2019 10:09 am
15What is the Hardest Part of Being Undiagnosed?” by Gina Szajnuk Photo by Season Atwater, Aware of Angels When The Mighty and the National Organization for Rare Disorders...
May 29, 2018 3:45 pm
17Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...
February 3, 2017 10:15 am
2It has been an emotional few days this week with my trip back to Salt Lake City for the NBA Utah Jazz game against our Milwaukee Bucks. I...
January 4, 2017 9:52 pm
0This story originally appeared on The Mighty To the Person Who Left Me a Rude Note After I Parked in a Handicapped Spot You left a rude note...
October 2, 2016 9:31 pm
3Today was a good day. It was a really good day. It is one of those days that I will never forget. Ava, Oskar, Lucy and I stepped...
September 25, 2016 9:04 pm
8“Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts in rare disease advocacy, science, collaborative...
September 24, 2016 9:24 pm
0July 20, 2016 5:17 pm
4This story originally appeared on The Mighty So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember I am the mother of three children...
May 13, 2016 5:27 pm
9May, 2016 Dear Mom, Happy Mother’s Day! Thank you for teaching me the Golden Rule, “One should treat others as one would like others to treat oneself.” Thank...