Search results for ‘Lucy’
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Lucy-Sotos Syndrome (Cerebral Gigantism)
Lucy: Age 5 Diagnosis: Sotos syndrome or Cerebral Gigantism USA When Lucy was born, the doctors kept saying something was wrong but didn’t know what. She wasn’t hitting any milestones....
Lucy home from ER. Abdominal Migraines with Visual Complications due to Autonomic Neuropathy
Lucy Szajnuk is four years old and lives in pain every single day. I was glad to hear that she did not have papilledema like Ava did in...
Headed to ER with Lucy Szajnuk
Lucy has had stomach pain for a week now. We just figured it was her normal stomach pain. However, she’s begging for a scope. She’s been screaming crying...
Lucy admitted. Ava with “mast cell” like rash. Goodbye 2015! Praying for answers in 2016!
Spending the Holidays with yet another urgent care visit, ER visit and hospital admittance, it made me realize how much I wanted 2015 to end. We need 2016...
Lucy Szajnuk spent the night at the ER. The dog that attacked her was released today and slept in his own bed.
Update: A lightbulb just went off in my head tonight as I watched the sunset from the beach. And, yes…it helped to get out of my hotel room...
Lucy Szajnuk: In the ER at Primary Children’s Hospital. Please Pray.
Lucy was sent home from school today because she complained that her entire body hurt. When she got home her fever wasn’t very high. However, she continued to...
Lucy Szajnuk’s Dog Attack: Rare and Life isn’t Fair: Open Letter regarding a NO DOG policy on all Soccer Fields in Park City, UT
My role in life is to advocate for my three children that are currently living in the medical world of the unknown. Our family lives on the sideline...
Lucy Szajnuk Update: No solid answers for infection and fever
Gina Szajnuk: Lucy’s blood and urine cultures came back negative today. We will not have a solid diagnoses for her 31,000 white blood cell count or her fever...
Lucy Szajnuk spending the night in observation at Primary Children’s
Gina Szajnuk: Lucy has had a fever the past three days. It has been as high as 106 degrees. Her white blood cell count this morning was 31,000...
Insurance company approves WES analysis for Oskar. Lucy Denied. Gina Denied.
Our insurance company just approved the WES (whole exome sequencing) analysis for Oskar. Great news! Thank you!!! However, they DENIED the WES analysis for both Lucy and Gina....