Archive for February, 2016

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Jaderee-Eosinophilic Colitis

February 28, 2016 8:27 pm

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Jaderee Ann, 17. I have eosinophilic colitis. I live in the United States of America. I have, acid reflux, nausea, occasional vomiting and constant, uncontrollable diarrhea. It started...

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Calen-Undiagnosed and Deletion/Duplication Chromosome 19

February 26, 2016 1:01 am

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My name is Calen. I am 15 years old. My parent’s have many ridiculous nicknames for me, but I can best be described as fun loving fury. I...

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Rachel- Undiagnosed with EOSINOPHILIC ESAPHAGITUS/COLITIS

February 25, 2016 6:50 pm

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Rachel, born in 1999. The youngest of four children.  She has two brothers, a sister, and a sister-in-law. Her diagnoses are: EOE, EC, Gastroparesis, Delayed Motility, Orthostatic Intolerance, Neurogenic Bladder,...

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Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem

February 25, 2016 5:56 pm

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Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem Media interested in interviews and access should contact Gina...

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Harlie-Juvenile Dermamyositis

February 24, 2016 6:48 pm

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Harlie is a 14 year old girl who has lived a very active life, playing softball, basketball, and other sports- right up until August 2014. When she started having...

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Michael-undiagnosed-with multiple diagnosis including dysautonomia…

February 23, 2016 1:03 am

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Hello, my name is Michael. I am 13 years old. I have dysautonomia, POTS (Postural Orthostatic Tachycardic Syndrome), MCAD (Mast Cell Activation Disease), apnea (central, obstructive, and mixed),...

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Hailey-Undiagnosed with Migraines & POTS: Postural Orthostatic Tachycardia Syndrome &

February 19, 2016 5:29 pm

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I am the mother of three girls. My middle daughter, Hailey, has always been very athletic- climbing at a young age, great coordination and always wanting to try different...

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Ricki-Neurofibromatosis Type 2

February 17, 2016 5:28 pm

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Hi my name is Ricki. You look at me and probably see just another normal face in a normal crowd. But there is more than what meets the...

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Stephanie Valdez: Harlie’s Juvenile dermatomyositis (JDM) update

February 16, 2016 9:44 pm

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Sorry it’s been such a long time for me to get an update out on Harlie. She’s been keeping me very busy these days!  I was going through some of...

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Michael-Undiagnosed

February 16, 2016 5:32 pm

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My name is Michael  and I am 13 years old. (Diagnosis still not fully determined)   I live in the United States of America. I’ve been fighting to...

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