Archive for April, 2016
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Rachel Platten’s Birthday wish for Ella on her 4th Birthday today!
RUN would like to introduce John Neal and Team Krabbe Strong. John made this video for #TeamElla for her 4th birthday today. Since Ella is such a huge...
Undiagnosed Day is today! April 29th, 2016 #UndiagnosedDay
What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease Network UDN What is Undiagnosed Day?...
We are not defined by “VACTERL Assoc., Gastroparesis, Chronic Lung Disease” by Amy Sue Peedle
Even though Aliyah is very sick. We are strong together. Aliyah is a fighter. I am a fighter. She will persevere. I will persevere. We are so very blessed. We...
RUN’s 1st Fundraiser with Papa Murphy’s in Park City: Now until we reach $1000!
Mike Lasater of Papa Murphy’s in Park City has generously committed to donating to the Rare and Undiagnosed Network this week from April 25th – May 1st in honor of...
Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families by Scott Iwasaki, The Park Record
SCENE Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families Scott Iwasaki, The Park Record POSTED: 04/26/2016 04:45:00 PM MDT...
OFFICIAL in Utah! Governor Herbert’s Declaration: Undiagnosed Disease Day is April 29th, 2016
The State of Utah will be the first in the history of the United States to declare April 29th, 2016, as Undiagnosed Disease Day. Currently, the Undiagnosed community...
As of today, Rachel Nielsen Update: Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen “Rachel’s GI was very concerned about the seizure like episodes she has been having. She decided that she needed...
Team Stockton Perry
Cashlynn Calvert Perry: There is something I have had on my mind for quite a while, and I have been trying to figure it out.. trying to understand. Since...
#UndiagnosedDay is April 29th: Our Courageous Kids by Jennifer Summers
Jennifer Summers: “I just wanted to share some special people with you all! Here are some of the MOST COURAGEOUS KIDS that fight battles everyday of their life....