Archive for May, 2016
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Katie Nuffer Updates RUN on Life as a Senior in High School with MHE
I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...
Diagnosed but still undiagnosed? by Brittany Stangley
Have you ever waited and waited for what felt like forever to find something out? Years in the making and I finally got the news I’ve been waiting...
Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...
Rachel Platten sends her love to our RUN families and our #RareTeens on her birthday!
Thank you Rachel Platten for sending your love to our Rare & Undiagnosed Network RUN families and our #RareTeens!!! You are such an inspiration to the entire #RareUndiagnosed...
National Ability Center Volunteers Needed for their Barn Party on June 4th!
Volunteers Needed! Barn Party: June 4, 2016 Howdy Cowboys and Gals, We need a few more ranch hands to make the Barn Party a success. Can you help...
RUN’s Undiagnosed Day Without Doctors at the National Ability Center
This was an intimate event for our Rare and Undiagnosed families to share about their diagnostic odyssey and to network about doctors, treatments and therapies. The activities included...
LAS VEGAS REVIEW-JOURNAL: Reno man’s suffering from undiagnosed disease also traps his mother By John M. Glionna
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...
Fox 13 News: Kearns teen battles rare, incurable disease to return to softball diamond by Tamara Vaifanua
Kearns teen battles rare, incurable disease to return to softball diamond POSTED 10:14 PM, MAY 14, 2016, BY FOX 13 NEWS AND TAMARA VAIFANUA “KEARNS, Utah – A...
National Ability Center Event today, May 14th: RUN’s Undiagnosed Day Without Doctors
Time for some Rare FUN today! This is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments...
“Racing for RUN” by Matthew Webster
“Racing for RUN” by Mathew Webster Maverick Modified #97 Driver: Matthew Webster, age 30 Spouse: Ciara Webster, age 27 Children: McKynlee Webster, age 5 I chose to “Race...