Archive for July, 2016

The Mighty: “So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember” by Gina Szajnuk

July 20, 2016 5:17 pm

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This story originally appeared on The Mighty  So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember I am the mother of three children...

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Online platform to embrace wide community of people affected by genetic diseases by Deborah Levenson

July 17, 2016 3:46 pm

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Connect. Ask. Answer. Discover. RUNmyDNA.com is going to launch soon! Great article on our new platform! We will be having a webinar soon for our early registered users!...

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Running for RUN: Taking Awareness to the next level by Jesse Marimat

July 10, 2016 4:37 pm

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I never considered myself an athlete. Growing up, I had juvenile asthma, and struggled to run “the mile” in high school. The furthest extent of my physical activity...

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