Search results for ‘Katie Nuffer’

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Katie Nuffer Updates RUN on Life as a Senior in High School with MHE

May 24, 2016 4:08 pm

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I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...

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Katie Nuffer: Shares about conquering her pain and starting her senior year of high school!

September 4, 2015 10:28 pm

9 pledge likes

Katie Nuffer: Hey everyone, The beginning of school is stressful and exciting at the same time. It’s something that I, personally, have been looking forward to for quite some...

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Katie Nuffer’s update on living with MHE: Recovery has been very, very difficult.

July 3, 2015 12:21 am

8 pledge likes

 Katie Nuffer:  This recovery has been very, very difficult.  But through all of the hard times, I’ve come out stronger and I learned not to take advantage of...

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Katie Nuffer’s Update on living with MHE

June 5, 2015 9:33 pm

6 pledge likes

Katie Nuffer:  “Hey Everyone. It’s been almost 8 months since I broke my arm. Things are still pretty hard, and painful… However I can go out and push through...

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Katie Nuffer shares her story with MHE

January 10, 2015 5:49 pm

16 pledge likes

Hey Everyone, my name is Katie Nuffer. Most people look at me and don’t think that any thing is wrong with me. And as much as I wish...

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Update by Katie and Megan Nuffer

March 25, 2015 4:01 pm

5 pledge likes

Katie’s update: STRESSED Stress. Have you ever been under so much stress it’s all you think about? Have you ever cried yourself to sleep multiple times a week,...

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Megan Nuffer and her sister’s story, Katie…

September 29, 2014 3:53 pm

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Gina, My name is Megan Nuffer, I am the one that sat behind you at the concert, Melissa and I. I am so happy you gave me your...

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RUN’s Journey

February 22, 2017 10:20 am

1 pledge like

My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...

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Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families

March 25, 2016 4:09 pm

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Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....

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Rare Mom’s Letter to Hollywood: “Miracles from Heaven”

March 23, 2016 5:34 pm

8 pledge likes

Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...

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