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May 24, 2016 4:08 pm
0I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...
September 4, 2015 10:28 pm
9Katie Nuffer: Hey everyone, The beginning of school is stressful and exciting at the same time. It’s something that I, personally, have been looking forward to for quite some...
July 3, 2015 12:21 am
8Katie Nuffer: This recovery has been very, very difficult. But through all of the hard times, I’ve come out stronger and I learned not to take advantage of...
June 5, 2015 9:33 pm
6Katie Nuffer: “Hey Everyone. It’s been almost 8 months since I broke my arm. Things are still pretty hard, and painful… However I can go out and push through...
January 10, 2015 5:49 pm
16Hey Everyone, my name is Katie Nuffer. Most people look at me and don’t think that any thing is wrong with me. And as much as I wish...
March 25, 2015 4:01 pm
5Katie’s update: STRESSED Stress. Have you ever been under so much stress it’s all you think about? Have you ever cried yourself to sleep multiple times a week,...
September 29, 2014 3:53 pm
0Gina, My name is Megan Nuffer, I am the one that sat behind you at the concert, Melissa and I. I am so happy you gave me your...
February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
March 25, 2016 4:09 pm
5Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
March 23, 2016 5:34 pm
9Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...