Search results for ‘aliyah’

Page 1 of 2

Aliyah Peedle Update: VACTERL Assoc., Gastroparesis, Chronic Lung Disease

April 21, 2016 11:45 pm

1

Amy Peedle updates us on her daughter: Aliyah will be getting both her tubes changed out tomorrow. They are due to be changed in June but because we...

Continue Reading

Aliyah-VACTERL Assoc., Gastroparesis, Chronic Lung Disease

February 9, 2016 6:01 pm

8

Aliyah is 14 when she was born she weighed 3lb 10oz. She has the VCTE of the VACTERL Association (V) = vertebral abnormalities (A) = anal atresia (C)...

Continue Reading

Aliyah Peedle will need surgery this week. When heading home from hospital tonight, they were rear-ended. Now, waiting to hear if admitted.

January 25, 2016 8:54 pm

4

Amy Peedle: “Aliyah got something stuck in her esophagus 10 days ago and has not been able to eat anything by mouth, she was able to drink some...

Continue Reading

Amy Peedle shares her journey with her daughter, Aliyah.

January 12, 2016 6:31 pm

14

Amy Peedle: Aliyah was born March 9th, 2001.  She weighed 3lb 10oz. She has the VCTE of the VACTERL Association (V) = vertebral abnormalities (A) = anal atresia (C)...

Continue Reading

Media

November 11, 2016 7:46 pm

0

RUN in the MEDIA  LINKS  Small Forces video: RARE AND UNDIAGNOSED NETWORK: RUN, DON’T WALK  KJZZ story of  RUN Julie Potter’s story in The Leader Aliyah Peedle’s story...

Continue Reading

National Ability Center Event today, May 14th: RUN’s Undiagnosed Day Without Doctors

May 14, 2016 5:16 am

8

Time for some Rare FUN today! This is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments...

Continue Reading

We are not defined by “VACTERL Assoc., Gastroparesis, Chronic Lung Disease” by Amy Sue Peedle

April 29, 2016 3:54 am

5

Even though Aliyah is very sick. We are strong together. Aliyah is a fighter. I am a fighter. She will persevere. I will persevere. We are so very blessed. We...

Continue Reading

Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families

March 25, 2016 4:09 pm

5

Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....

Continue Reading

Rare Mom’s Letter to Hollywood: “Miracles from Heaven”

March 23, 2016 5:34 pm

9

Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...

Continue Reading

Rare Teen Photo Shoot by Aware of Angels, Utah Rare and RUN!

January 24, 2016 8:46 pm

6

The RARE TEEN PHOTO SHOOT was a HUGE success!  Season Atwater, Aware of Angels, is such a talented photographer!  Thank you to Angel Benson, Maddie Benson, Julie Jackson, Kristen Packard, Rebecca...

Continue Reading