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National Ability Center: Saluting Our Heroes

November 15, 2017 11:46 pm

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Thank you to the National Ability Center (NAC) for including RUN at your Saluting Our Heroes luncheon. It is always such an honor to be a part of the...

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Rare Disease Congressional Caucus Briefing November 15th

November 14, 2017 7:50 pm

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RUN is a proud partner of the Rare Disease Congressional Caucus An accurate diagnosis is usually the first step in developing a treatment plan for a patient, but it...

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The Rarest of the Rare: Our Miracle Boy by Stefanie B.

November 14, 2017 4:07 am

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Mothers should always be given credit for knowing their children. Find practitioners who will listen to you and care more about what you know than what they know. I started this blog to...

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A Dream Come True! The Szajnuks meet Rachel Platten

September 22, 2017 3:20 pm

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We are all  a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...

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RUN’s NBA Initiative: NBA Teams Hosted Rare and Undiagnosed Families!

September 14, 2017 2:40 am

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RUN’s NBA Initiative is growing in 2017! NBA teams: the Milwaukee Bucks, the Utah Jazz, the Phoenix Suns, the Washington Wizards and the Boston Celtics are already scheduled to host rare and undiagnosed families in...

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It’s Official! The Szajnuks are back with the NBA Utah Jazz

September 13, 2017 10:15 am

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We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...

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“The Light in the Darkness” by Kathleen Anne

July 10, 2017 8:24 pm

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There comes a time in your life when you have to sit back and watch how quickly the world is spinning around you. You stop, as everything is...

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Szajnuk’s Next Chapter: Moving on from the Milwaukee Bucks

June 16, 2017 4:01 pm

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It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...

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Still Living in the Unknown: Happy 10th Birthday Ava Szajnuk!

June 4, 2017 10:37 am

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We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...

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Devastating Diagnosis: Rachel Nielsen’s Letter to her Brother

June 1, 2017 10:35 pm

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Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...

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