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January 19, 2019 10:09 am
15What is the Hardest Part of Being Undiagnosed?” by Gina Szajnuk Photo by Season Atwater, Aware of Angels When The Mighty and the National Organization for Rare Disorders...
May 27, 2018 10:29 am
4Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
February 28, 2018 9:27 pm
16RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...
December 31, 2017 11:22 pm
7As 2017 comes to an end, we want to wish you all a safe and healthy 2018! Thank you to all of our RUN families for continuing to...
September 13, 2017 10:15 am
10We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...
June 16, 2017 4:01 pm
5It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...
March 21, 2017 10:40 am
4UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...
November 17, 2016 8:36 pm
4Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...
October 29, 2016 10:20 pm
5Please watch: Being Undiagnosed is a Diagnosis (until further noticed) It first viewed on the Rare Disease Report Gina Szajnuk, Co-Founder and Executive Director, Rare and Undiagnosed Network (RUN) talks...
October 21, 2016 9:22 pm
3Gina I hope you and the family have comfortably settled in and are enjoying the cooler Wisconsin weather. Now that basketball season and school is in full swing,...