Archive for the ‘Gina Szajnuk’ Category

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“What is the hardest part of being undiagnosed?” by Gina Szajnuk

January 19, 2019 10:09 am

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What is the Hardest Part of Being Undiagnosed?” by Gina Szajnuk Photo by Season Atwater, Aware of Angels When The Mighty and the National Organization for Rare Disorders...

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Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family

May 27, 2018 10:29 am

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Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...

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RUN’s 2018 Rare Disease Day!

February 28, 2018 9:27 pm

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RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...

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Wishing you a Safe and Healthy 2018!

December 31, 2017 11:22 pm

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As 2017 comes to an end, we want to wish you all a safe and healthy 2018!  Thank you to all of our RUN families for continuing to...

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It’s Official! The Szajnuks are back with the NBA Utah Jazz

September 13, 2017 10:15 am

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We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...

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Szajnuk’s Next Chapter: Moving on from the Milwaukee Bucks

June 16, 2017 4:01 pm

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It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...

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UNDIAGNOSED is a DIAGNOSIS: The Szajnuk’s Journey Updated!

March 21, 2017 10:40 am

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UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk  I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...

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RUN wins RareVoice Award from the EveryLife Foundation for Rare Diseases

November 17, 2016 8:36 pm

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Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...

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Rare Disease Report: Being Undiagnosed is a Diagnosis (until further noticed)

October 29, 2016 10:20 pm

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Please watch: Being Undiagnosed is a Diagnosis (until further noticed) It first viewed on the Rare Disease Report Gina Szajnuk, Co-Founder and Executive Director, Rare and Undiagnosed Network (RUN) talks...

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“Kind Words” by Doris

October 21, 2016 9:22 pm

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Gina I hope you and the family have comfortably settled in and are enjoying the cooler Wisconsin weather.  Now that basketball season and school is in full swing,...

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