Archive for the ‘Harlie Valdez’ Category

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Prayer for Harlie Valdez as she continues her fight against JDM

October 3, 2016 3:15 pm

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Harlie Valdez has been in remission from Juvenile dermatomyositis (JDM).  However, new symptoms have been creeping up on Harlie this fall. She is scheduled for a MRI tomorrow at Intermountain...

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Fox 13 News: Kearns teen battles rare, incurable disease to return to softball diamond by Tamara Vaifanua

May 15, 2016 10:36 am

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Kearns teen battles rare, incurable disease to return to softball diamond POSTED 10:14 PM, MAY 14, 2016, BY FOX 13 NEWS AND TAMARA VAIFANUA “KEARNS, Utah – A...

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Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families

March 25, 2016 4:09 pm

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Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....

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Gabe Valdez’s Rare Disease Day Speech and Harlie Made the Kearns High School Softball Team Today!

March 2, 2016 7:03 pm

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I believe we all have a purpose and a destiny to our lives . It may not happen on your timeline. But it will happen as long as you keep...

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Harlie-Juvenile Dermamyositis

February 24, 2016 6:48 pm

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Harlie is a 14 year old girl who has lived a very active life, playing softball, basketball, and other sports- right up until August 2014. When she started having...

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Stephanie Valdez: Harlie’s Juvenile dermatomyositis (JDM) update

February 16, 2016 9:44 pm

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Sorry it’s been such a long time for me to get an update out on Harlie. She’s been keeping me very busy these days!  I was going through some of...

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Harlie Valdez: Her Make A Wish event then ER last night. Please pray.

October 16, 2015 5:07 pm

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Gabe Valdez: “Harlie was vomiting all day yesterday and was running a fever so we took her in at 10pm last night. You know the drill. We went...

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Stephanie was told to call 911. Harlie is being rushed to the ER

April 9, 2015 10:33 pm

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Dustin Stipanovich just informed us that Harlie has been vomiting blood and has had extreme stomach pain. When they gave her meds today, they came out of her...

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Gabe Valdez shares: Harlie gets a break from the hospital last week. Home over the weekend. And, an update on Harlie this morning.

April 6, 2015 6:28 pm

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Gabe shared: I would like to thank Altius Insurance  & Primary Children’s Hospital for making it possible for my baby to take a break from reality and enjoy...

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Thank you for all of your donations for Harlie Valdez!

April 1, 2015 10:37 pm

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RUN wanted to take a moment to thank everyone for their generosity! When we went to visit Harlie at the beginning of the week, we asked her what...

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