April 1, 2015 10:37 pm
13RUN wanted to take a moment to thank everyone for their generosity! When we went to visit Harlie at the beginning of the week, we asked her what...
March 23, 2015 10:35 pm
6“…our baby will be so tiny & small, having her mom’s beautiful feature. Totally in love with her I’ll fall, she’ll be the most beautiful creature…she’ll have small...
March 23, 2015 9:06 pm
12I was just sitting down to call Stephanie today to find out how Harlie was doing. Thank you for all of your comments on RUN as well as...
March 14, 2015 7:19 pm
26I have been blessed to meet the most amazing rare children as well as their strong mothers and fathers. No one can truly understand what they go through...
March 10, 2015 5:38 pm
2I met with my specialists for yet another round of appointments over the past week. There are still no answers for me. I had a few more diagnostic...