Archive for the ‘RUN News’ Category

A Dedicated Rare Disease Platform to Find Answers. Faster.

April 8, 2016 9:05 pm

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We have tirelessly searched for answers and have sacrificed nearly everything for us and for our loved ones with a rare or undiagnosed disease to receive the information and...

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Thank you to everyone involved last Saturday! RUN Day Without Doctors Hosted by the National Ability Center! We have a ton of pictures to share!

September 21, 2015 1:58 pm

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Words cannot express how special last Saturday was for RUN! With the amazing generosity of the National Ability Center, we had a day of fun for our local rare and...

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We are now able to file the 501(c)(3) application! Brian, thank you for your gift to our organization!

March 18, 2015 6:43 pm

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Dear RUN families, Due to the generosity of Brian Villers, Justin’s childhood friend, we were able to afford the $850 application fee to file the 501(c)(3) this past...

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Deseret News covers our Rare Children on the Court with the Utah Jazz!

February 24, 2015 9:50 pm

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Children with rare diseases get a unique opportunity to stand with players before game By Amy Donaldson, Deseret News Published: Tuesday, Feb. 24 2015 11:20 a.m. MST Updated:...

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