Archive for the ‘Undiagnosed Day’ Category

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Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!

April 29, 2023 8:00 am

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What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....

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It’s official! Thank you to Governor Spencer Cox for his declaration of April 29th to be Undiagnosed Rare Disease Day in Utah! #UndiagnosedDay

April 26, 2023 8:00 am

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For More Information for April 29th, 2023: Undiagnosed Rare Disease Day #UndiagnosedDay What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and...

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Undiagnosed Day is coming up on April 29th!

March 23, 2023 9:00 am

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What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....

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Searching for a Diagnosis by Daniel Levine

April 21, 2022 8:00 am

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April 21, 2022 Many people living with a rare and undiagnosed disease face a prolonged diagnostic odyssey that can be financially and emotionally taxing as they seek to...

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Undiagnosed Rare Disease Day is April 29, 2019!

February 20, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah!  What...

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Utah: Rare Disease Day & Undiagnosed Rare Disease Day

February 1, 2018 12:04 pm

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Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...

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Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community

April 29, 2017 10:01 am

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 All rare diseases were once Undiagnosed.  What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...

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Undiagnosed: An Update on the Szajnuks

April 27, 2017 5:31 am

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Anyone living with an undiagnosed disease knows how hard it is every single day to persevere. When the disease is invisible, it is even harder because you have to...

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The Undiagnosed Alliance: Mission and Goals

April 6, 2017 9:49 am

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The Undiagnosed Alliance (the Alliance) is a coalition of undiagnosed rare disease stakeholders coming together with the purpose to foster unified advocacy among patient organizations, individuals, and stakeholders...

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