Archive for the ‘Undiagnosed Disease Network (UDN)’ Category

Running for Rare in the 2019 Boston Marathon

January 16, 2019 10:37 am

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The 2019 Boston Marathon is on Monday, April 15th! Dr. Lorenzo Botto is partnering with RUN as his community partner! Hello! My name is Dr. Lorenzo Botto. I am running to help families with...

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#UndiagnosedDay Celebrates Undiagnosed Diseases Network (UDN)

April 20, 2018 9:16 pm

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“Solving Medical Mysteries Through Team Science” – UDN Zarko’s Story: Genomic Medicine In Action “Zarko Stanacev experienced years of mysterious debilitating symptoms. He applied to NIH’s Undiagnosed Diseases...

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The Szajnuks and the Undiagnosed Diseases Network (UDN)

December 21, 2016 11:57 am

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Today is the one year mark for us with the Undiagnosed Diseases Network (UDN). Our applications landed on their desk last December, 21st, 2015.  We are so very...

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