Archive for the ‘Undiagnosed Rare Disease Patient’ Category
“Undiagnosed: Avery’s Battle” by Alyssa Langston
It started when he was 6 months old. He was getting fevers and frequent ear infections like clockwork. Every 28-30 days on the dot, his fever would spike...
#RUN2U Event on April 27th: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Flyer donated by Erica Braymen, Ecosyse Do you know what it is like to live with an undiagnosed rare disease? Please join the University of Utah School...
Josh Forsythe: Father of an Undiagnosed Rare Disease son, Calen
Calen is nearly 16 years old. The only thing he’s been “diagnosed” with is developmental delay and a chromosomal abnormality, the latter which was determined at age 11...