Archive for the ‘Utah Rare’ Category
Fourth Annual Utah Rare Symposium
Our Fourth Annual Utah Rare Symposium was a huge success this past weekend! Thank you to our 2018 Utah Rare Chair, Tristin West! Thank you to all of...
2018 Utah Rare: RARE ANGELS Tribute
We are creating a RARE ANGELS Tribute for our upcoming Utah Rare event on March 3rd. If you have a RARE ANGEL in your family or know of someone...
Register now for our 4th Annual Utah Rare Symposium
Registration for the 2018 Utah Rare Symposium is now OPEN! Please share with your rare friends and rare disease community! We have a great day planned and are...
RUN’s NBA Initiative: 30 Rare & Undiagnosed Children invited for NBA Utah Jazz Appearance
Thank you Boris Diaw for donating 60 tickets through the player donation program to RUN! RUN is currently looking for thirty rare and undiagnosed children to make an...
Utah Rare’s Journey
It was an honor to share my journey with Utah Rare at the Global Genes RARE Patient Advocacy Summit along with Sharon King of Taylor’s Tale and the NC Rare Disease Network. The breakout...
A Dedicated Rare Disease Platform to Find Answers. Faster.
We have tirelessly searched for answers and have sacrificed nearly everything for us and for our loved ones with a rare or undiagnosed disease to receive the information and...