Search results for ‘Hailey’

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2021 8:00 am

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All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2020 8:00 am

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Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...

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Today is Undiagnosed Rare Disease Day! #UndiagnosedDay

April 29, 2019 10:00 am

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Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...

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Undiagnosed Rare Disease Day on April 29th, 2019!

April 23, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...

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Undiagnosed Rare Disease Day is April 29, 2019!

February 20, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah!  What...

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RUN Story

May 7, 2018 6:50 am

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UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk  (This blog was started in February, 2015) I have three children that are officially...

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Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community

April 29, 2017 10:01 am

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 All rare diseases were once Undiagnosed.  What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...

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UNDIAGNOSED is a DIAGNOSIS: The Szajnuk’s Journey Updated!

March 21, 2017 10:40 am

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UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk  I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...

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RUN’s Journey

February 22, 2017 10:20 am

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My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...

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Angel’s Hands Foundation Goes Above and Beyond

April 17, 2016 11:25 pm

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  Mark Kristensen and his Angel’s Hands Foundation (AHR) generously donated towards our very own Rare Teen, Hailey Sampsel, for her travel to the  three-week Comprehensive Pain Rehabilitation...

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