Page 2 of 3
April 29, 2021 8:00 am
0All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
April 29, 2020 8:00 am
12Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
April 29, 2019 10:00 am
8Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...
April 23, 2019 12:00 pm
14Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
February 20, 2019 12:00 pm
28Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
May 7, 2018 6:50 am
0UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk (This blog was started in February, 2015) I have three children that are officially...
April 29, 2017 10:01 am
4All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...
March 21, 2017 10:40 am
4UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...
February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
April 17, 2016 11:25 pm
3Mark Kristensen and his Angel’s Hands Foundation (AHR) generously donated towards our very own Rare Teen, Hailey Sampsel, for her travel to the three-week Comprehensive Pain Rehabilitation...