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June 1, 2015 10:34 pm
12Harlie Valdez and Ava Szajnuk enjoy a night out together: This past Saturday night was a great night at The National Ability Center’s Barn Party. For Harlie, it...
May 10, 2015 4:30 pm
0Help For Harlie added 3 new photos — feeling blessed at Primary Children’s Hospital. First of all I would like to wish all those beautiful amazing women out...
April 19, 2015 5:57 pm
10GABE SHARES THIS SUNDAY MORNING… Today is the 231st day of our journey. It begins at 3:00a. My baby calls for me because she has to go to...
April 4, 2015 8:54 pm
5I have been blown away by the generosity of strangers over the past few years. The power of love from friends and family helps more than you will...
February 24, 2015 9:25 pm
1This past Monday night was a dream come true for me. Justin and I wanted to give the gift of the Utah Jazz to our Utah Rare families....
February 23, 2015 4:29 pm
2RUN wanted to give the gift of the Jazz in support of the Utah Rare events later this week! Thanks to the Jazz player donation program, we were...
August 22, 2014 10:10 pm
0The RUN Advisory Board Mission & Vision Raise awareness for families with children afflicted with undiagnosed or rare diagnosed conditions. Urge insurance companies to reimburse genome sequencing in...