Take the Pledge

1 in 10 of your friends, family, and colleagues are living with a rare or undiagnosed disease – nearly half are children.

Join Gina Szajnuk and the rest of the Rare & Undiagnosed Network by pledging to RUN. We welcome you with open arms to a loving community where stories of hope are shared and questions are answered. Pledge below and we will also notify you when new features are added to the site to allow many others to share.

 

When you Pledge to RUN, we, will change everything.

Politicians, athletes, celebrities, business leaders and all those who have a voice and passion for life, please pledge to help ours.

Continue to provide dedicated care and information to the family members who spend every minute searching for answers.

Provide the coverage necessary for the 30 million people in our community to live a fulfilling life.

Continue to show your incredible support, share information, and urge insurance companies to consider greater coverage for our community.

Remain passionate and dedicated in your search to uncover key information and help bring genome sequencing into clinical practice. You are guiding the way.

Don’t ever stop showing the global community what incredible strength and passion you have for life. People are listening. So continue to share and inspire.

 

My name is , my email is , I am a  and I Pledge to RUN

I commit to:

Raise awareness for families with children afflicted with undiagnosed or rare diagnosed conditions. Urge insurance companies to reimburse genome sequencing in clinical settings.

Network with researchers, insurance providers, and industry stakeholders to meet these families’ needs.

Click here to sign the pledge
RUN recognizes the trust you are placing in us through signing up for the RUN pledge. We are committed to the protection of your personal information. We will not share your email address.