RUN Privacy Policy

Privacy Policy

Rare and Undiagnosed



Protecting your private information is our priority. This Statement of Privacy applies to the and and governs data collection and usage. For

the purposes of this Privacy Policy, unless otherwise noted, all references to

include and RUN. The RUN website is a Advocacy and Fund Raising

site. By using the RUN website, you consent to the data practices described in this statement.


Collection of your Personal Information

RUN may collect personally identifiable information, such as your name. We may gather additional

personal or non-personal information in the future.


Information about your computer hardware and software may be automatically collected by RUN.

This information can include: your IP address, browser type, domain names, access times and

referring website addresses. This information is used for the operation of the service, to maintain

quality of the service, and to provide general statistics regarding use of the RUN website.

Please keep in mind that if you directly disclose personally identifiable information or personally

sensitive data through RUN’s public message boards, this information may be collected and used

by others.


RUN encourages you to review the privacy statements of websites you choose to link to from

RUN so that you can understand how those websites collect, use and share your information.

RUN is not responsible for the privacy statements or other content on websites outside of the

RUN website.


Use of your Personal Information

RUN collects and uses your personal information to operate its website(s) and deliver the services

you have requested.


RUN may also use your personally identifiable information to inform you of other products or

services available from RUN and its affiliates. RUN may also contact you via surveys to conduct

research about your opinion of current services or of potential new services that may be offered.

RUN does not sell, rent or lease its customer lists to third parties.


RUN may share data with trusted partners to help perform statistical analysis, send you email or

postal mail, provide customer support, or arrange for deliveries. All such third parties are

prohibited from using your personal information except to provide these services to RUN, and

they are required to maintain the confidentiality of your information.


RUN will disclose your personal information, without notice, only if required to do so by law or in

the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply

with legal process served on RUN or the site; (b) protect and defend the rights or property of

RUN; and, (c) act under exigent circumstances to protect the personal safety of users of RUN, or

the public.


Security of your Personal Information

RUN secures your personal information from unauthorized access, use or disclosure. When

personal information (such as a credit card number) is transmitted to other websites, it is protected

through the use of encryption, such as the Secure Sockets Layer (SSL) protocol.


Children Under Thirteen

RUN does not knowingly collect personally identifiable information from children under the age of

thirteen. If you are under the age of thirteen, you must ask your parent or guardian for permission

to use this website.


Opt-Out & Unsubscribe

We respect your privacy and give you an opportunity to opt-out of receiving announcements of

certain information. Users may opt-out of receiving any or all communications from RUN by

contacting us here:

– Web page:

– Email: [email protected]

– Phone:(310) 883-4353


Changes to this Statement

RUN will occasionally update this Statement of Privacy to reflect company and customer

feedback. RUN encourages you to periodically review this Statement to be informed of how RUN

is protecting your information.


Contact Information

RUN welcomes your questions or comments regarding this Statement of Privacy. If you believe

that RUN has not adhered to this Statement, please contact RUN at:

3732 Sunridge Drive

Park City, Utah 84098

Email Address:

[email protected]

Telephone number:

(310) 883-4353

Effective as of January 01, 2016