Posts tagged ‘Ava Szajnuk’
Page 1 of 3
Watch the #UndiagnosedDay Presentation by Ava Zanik (Szajnuk), Undiagnosed Rare Advocate
“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
Ava Szajnuk’s Sixth-Year Anniversary: Second Chance at Life
June 15th marks Ava’s sixth-year anniversary of her first cranial surgery during the summer of 2013. Today, also marks the first day I started to share our journey...
Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...
RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
April 29 is Undiagnosed Rare Disease Day. It is a day when advocates raise awareness among the general public and policy makers about the emotional, physical, and financial...
Utah HB211: Rare Disease Advisory Council
Action Alert: The House of Representatives will consider HB211 this Friday, February 15, 2019 at 2:30, in the House Chamber. Community members can gather to watch and listen...
Rare & Undiagnosed 101: Radiologists Matter
Updated April 28th, 2020: My father suffered through a cardiac arrest during the half-time of the Rose Bowl on New Year’s Day 2020. He was in the ICU...
#RUN2U: RARE TAMU at Texas A&M University
RARE TAMU is a student organization at Texas A&M University that works to spread awareness of RARE diseases. They are a National Organization for Rare Disorders (NORD)...
“Undiagnosed is a Diagnosis” by Gina and Ava Szajnuk
Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...
#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Do you know what it is like to live with a rare or an undiagnosed rare disease? Please join the University of Utah School of Medicine’s Pediatric Medicine...