Posts tagged ‘EveryLife Foundation for Rare Diseases’

Upcoming RUN Involved Events and Projects

March 5, 2018 8:40 pm

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  Rare and Undiagnosed Network (RUN), a rare and undiagnosed disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are preparing...

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RUN’s 2018 Rare Disease Day!

February 28, 2018 9:27 pm

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RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...

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Rare Disease Congressional Caucus Briefing November 15th

November 14, 2017 7:50 pm

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RUN is a proud partner of the Rare Disease Congressional Caucus An accurate diagnosis is usually the first step in developing a treatment plan for a patient, but it...

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Rare Disease Week 2017

February 11, 2017 9:50 pm

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RUN will be doing the following during Rare Disease Week! Sunday, February 26, 2017: Milwaukee Bucks vs. Phoenix Suns 2:30 PM – Bradley Center Address: Bradley Center, 1001 N...

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RUN wins RareVoice Award from the EveryLife Foundation for Rare Diseases

November 17, 2016 8:36 pm

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Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...

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