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May 29, 2018 3:45 pm
17Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...
May 27, 2018 4:28 pm
13Do you know what it is like to live with a rare or an undiagnosed rare disease? Please join the University of Utah School of Medicine’s Pediatric Medicine...
May 27, 2018 10:29 am
4Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
September 22, 2017 3:20 pm
5We are all a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...
September 13, 2017 10:15 am
10We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...
June 16, 2017 4:01 pm
5It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...
June 4, 2017 10:37 am
9We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...
February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
January 5, 2017 12:12 pm
4Please take the time to vote for MyGene2 in the Open Science Prize!! Your vote matters! They are breaking down the silos! They are RUN’s dream! They will publicly share...
January 4, 2017 9:52 pm
0This story originally appeared on The Mighty To the Person Who Left Me a Rude Note After I Parked in a Handicapped Spot You left a rude note...