Posts tagged ‘Gina Szajnuk’

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“Undiagnosed is a Diagnosis” by Gina and Ava Szajnuk

May 29, 2018 3:45 pm

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Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...

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#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group

May 27, 2018 4:28 pm

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Do you know what it is like to live with a rare or an undiagnosed rare disease? Please join the University of Utah School of Medicine’s Pediatric Medicine...

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Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family

May 27, 2018 10:29 am

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Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...

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A Dream Come True! The Szajnuks meet Rachel Platten

September 22, 2017 3:20 pm

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We are all  a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...

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It’s Official! The Szajnuks are back with the NBA Utah Jazz

September 13, 2017 10:15 am

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We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...

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Szajnuk’s Next Chapter: Moving on from the Milwaukee Bucks

June 16, 2017 4:01 pm

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It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...

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Still Living in the Unknown: Happy 10th Birthday Ava Szajnuk!

June 4, 2017 10:37 am

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We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...

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RUN’s Journey

February 22, 2017 10:20 am

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My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...

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MyGene2 and RUN partnership. Please vote today!

January 5, 2017 12:12 pm

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Please take the time to vote for MyGene2 in the Open Science Prize!!  Your vote matters! They are breaking down the silos! They are RUN’s dream! They will publicly share...

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The Mighty: “To the Person Who Left Me a Rude Note After I Parked in a Handicapped Spot” by Gina Szajnuk

January 4, 2017 9:52 pm

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This story originally appeared on The Mighty To the Person Who Left Me a Rude Note After I Parked in a Handicapped Spot You left a rude note...

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