June 1, 2017 10:35 pm
5Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...
March 11, 2017 10:17 pm
4Kate Nielsen received a call this morning at 1:00a that her daughter, Rachel, does in fact have a bacteria infection in her central line. She will have it...
December 20, 2016 6:41 pm
13You can do it, Rachel, I told myself as I visualized sticking the landing of my next skill. Trembling from anticipation, I wobbled, tightening my toes’ grip on...
October 31, 2016 8:36 pm
3Please don’t write me off or tell me it’s all in my head simply because you don’t have answers for me. I came to the doctor’s because I...
October 21, 2016 8:20 pm
8Another update! (You guys are probably sick of me by now😅😉🙈) I recently got some results back from a muscle biopsy in Wisconsin and I saw a geneticist...
October 3, 2016 3:02 pm
1Sunday, October 3, 2016 Rachel Nielsen and family appreciate all the love and prayers sent our way. This has been a very stressful and tiring week spent at...
September 28, 2016 11:31 pm
4We have had a long day of negotiating between the University of Utah Hospital and Intermountain Primary Children’s Hospital for Rachel’s care today. She has two amazing doctors...
April 26, 2016 2:25 am
4Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen “Rachel’s GI was very concerned about the seizure like episodes she has been having. She decided that she needed...