April 3, 2023 8:00 am
0For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...
February 28, 2022 8:00 am
0Today is for raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. In the USA, it’s considered...
February 28, 2018 9:27 pm
16RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...
February 1, 2018 12:04 pm
13Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...
October 25, 2016 8:34 pm
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