Posts tagged ‘Undiagnosed Rare Disease Day’

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#UndiagnosedDay is coming up on April 29th!

April 1, 2022 8:00 am

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Please help us raise awareness for the undiagnosed rare disease community by supporting Undiagnosed Rare Disease Day on April 29th! #UndiagnosedDay What is an undiagnosed condition? A child...

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2021 8:00 am

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All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2020 8:00 am

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Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...

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Fox 13 News Utah: Undiagnosed Rare Disease Day

May 1, 2019 12:00 pm

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“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...

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Undiagnosed Rare Disease Day on April 29th, 2019!

April 23, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...

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2019 RUN Awareness Campaigns & Programs

February 26, 2019 12:00 pm

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RUN is excited to continue on this journey with our rare and undiagnosed families with the generous support of our community in 2019! RUN Awareness Campaigns Rare Disease...

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Undiagnosed Rare Disease Day is April 29, 2019!

February 20, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah!  What...

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April 29th is #UndiagnosedDay: Undiagnosed Rare Disease Day!

April 29, 2018 6:18 pm

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All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...

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Upcoming RUN Involved Events and Projects

March 5, 2018 8:40 pm

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  Rare and Undiagnosed Network (RUN), a rare and undiagnosed disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are preparing...

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Utah: Rare Disease Day & Undiagnosed Rare Disease Day

February 1, 2018 12:04 pm

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Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...

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