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April 1, 2022 8:00 am
0Please help us raise awareness for the undiagnosed rare disease community by supporting Undiagnosed Rare Disease Day on April 29th! #UndiagnosedDay What is an undiagnosed condition? A child...
April 29, 2021 8:00 am
0All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
April 29, 2020 8:00 am
12Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
May 1, 2019 12:00 pm
7“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...
April 23, 2019 12:00 pm
14Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
February 26, 2019 12:00 pm
22RUN is excited to continue on this journey with our rare and undiagnosed families with the generous support of our community in 2019! RUN Awareness Campaigns Rare Disease...
February 20, 2019 12:00 pm
28Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
April 29, 2018 6:18 pm
16All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...
March 5, 2018 8:40 pm
13Rare and Undiagnosed Network (RUN), a rare and undiagnosed disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are preparing...
February 1, 2018 12:04 pm
13Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...