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April 29, 2023 4:36 pm
0“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
April 29, 2023 10:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
March 23, 2023 9:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
August 29, 2022 8:00 am
0Hi. my name is Alicia Atwater and I’m fundraising for my niece Asia Atwater’s funeral expenses. Fundraiser for Season Atwater by Alicia Simons Atwater : Asia Skye Atwater...
June 15, 2019 12:00 pm
25June 15th marks Ava’s sixth-year anniversary of her first cranial surgery during the summer of 2013. Today, also marks the first day I started to share our journey...
April 23, 2019 12:00 pm
14Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
April 17, 2019 12:00 pm
20In 2018, RUN partnered with the University of Utah School of Medicine’s Pediatric Medicine Interest Group for an hour of experiencing what it is like to live with...
March 25, 2019 12:00 pm
19Do you know what it is like to live with a rare or an undiagnosed rare disease? In 2018, RUN partnered with the University of Utah School of...
March 5, 2019 12:00 pm
15Update: Senator David Buxton is supporting HB435 in the Senate March 5th, 2019 at 7:30p UPDATE: HB435, Undiagnosed Children Insurance Coverage, passed the Utah House of Representatives unanimously...
March 5, 2019 10:00 am
7Have you participated in a clinical trial and are open to sharing your experience at a future RUN Educational Series event on clinical trials? If you are a...