Posts tagged ‘#UndiagnosedDay’
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Watch the #UndiagnosedDay Presentation by Ava Zanik (Szajnuk), Undiagnosed Rare Advocate
“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
Watch Gina Zanik (Szajnuk) on #UndiagnosedDay and the Challenges Faced by Patients | VibeCast Episode 9
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Undiagnosed Day is coming up on April 29th!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
PRESS RELEASE: Undiagnosed Patient Organizations Begin Leveraging RARE-X
Rare and Undiagnosed Network and Undiagnosed Diseases Network Foundation join forces with RARE-X to enable patient data collection for undiagnosed patients and families Rare and Undiagnosed Network and...
Today is Undiagnosed Day! #UndiagnosedDay
How can you participate? Please help us raise awareness for the undiagnosed disease community by sharing about Undiagnosed Rare Disease Day (UndiagnosedDay) on April 29th! Please use #UndiagnosedDay...
Searching for a Diagnosis by Daniel Levine
April 21, 2022 Many people living with a rare and undiagnosed disease face a prolonged diagnostic odyssey that can be financially and emotionally taxing as they seek to...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...