Posts tagged ‘Utah Rare Teen Photo Project’

OFFICIAL in Utah! Governor Herbert’s Declaration: Undiagnosed Disease Day is April 29th, 2016

April 27, 2016 1:37 pm

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The State of Utah will be the first in the history of the United States to declare April 29th, 2016, as Undiagnosed Disease Day. Currently, the Undiagnosed community...

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Jaderee-Eosinophilic Colitis

February 28, 2016 8:27 pm

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Jaderee Ann, 17. I have eosinophilic colitis. I live in the United States of America. I have, acid reflux, nausea, occasional vomiting and constant, uncontrollable diarrhea. It started...

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Calen-Undiagnosed and Deletion/Duplication Chromosome 19

February 26, 2016 1:01 am

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My name is Calen. I am 15 years old. My parent’s have many ridiculous nicknames for me, but I can best be described as fun loving fury. I...

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Rachel- Undiagnosed with EOSINOPHILIC ESAPHAGITUS/COLITIS

February 25, 2016 6:50 pm

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Rachel, born in 1999. The youngest of four children.  She has two brothers, a sister, and a sister-in-law. Her diagnoses are: EOE, EC, Gastroparesis, Delayed Motility, Orthostatic Intolerance, Neurogenic Bladder,...

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Michael-undiagnosed-with multiple diagnosis including dysautonomia…

February 23, 2016 1:03 am

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Hello, my name is Michael. I am 13 years old. I have dysautonomia, POTS (Postural Orthostatic Tachycardic Syndrome), MCAD (Mast Cell Activation Disease), apnea (central, obstructive, and mixed),...

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Ricki-Neurofibromatosis Type 2

February 17, 2016 5:28 pm

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Hi my name is Ricki. You look at me and probably see just another normal face in a normal crowd. But there is more than what meets the...

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Michael-Undiagnosed

February 16, 2016 5:32 pm

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My name is Michael  and I am 13 years old. (Diagnosis still not fully determined)   I live in the United States of America. I’ve been fighting to...

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Preston-Eosinophilic Colitis

February 9, 2016 6:06 pm

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Preston has spent all of his 15 years of life living in beautiful Utah with his two older sisters and one older brother. Preston has Eosinophilic Colitis, one...

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Aliyah-VACTERL Assoc., Gastroparesis, Chronic Lung Disease

February 9, 2016 6:01 pm

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Aliyah is 14 when she was born she weighed 3lb 10oz. She has the VCTE of the VACTERL Association (V) = vertebral abnormalities (A) = anal atresia (C)...

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