Search results for ‘Calen’
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Josh Forsythe: Father of an Undiagnosed Rare Disease son, Calen
Calen is nearly 16 years old. The only thing he’s been “diagnosed” with is developmental delay and a chromosomal abnormality, the latter which was determined at age 11...
Robyn Forsythe shares her updates on her son, Calen
Friday, September 30th: Calen is up and down. He spiked a fever last night and was very uncomfortable but once fever broke he was great through the night....
Rachel Nielsen and Calen Forsythe: Prayers Needed
We have had a long day of negotiating between the University of Utah Hospital and Intermountain Primary Children’s Hospital for Rachel’s care today. She has two amazing doctors...
Calen-Undiagnosed and Deletion/Duplication Chromosome 19
My name is Calen. I am 15 years old. My parent’s have many ridiculous nicknames for me, but I can best be described as fun loving fury. I...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...
Undiagnosed Rare Disease Day on April 29th, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
Undiagnosed Rare Disease Day is April 29, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
RUN’s NBA Initiative: NBA Teams Hosted Rare and Undiagnosed Families!
The Utah Jazz honored 30 rare and undiagnosed children and their siblings on the court as National Anthem Buddies on March 17th, 2018! Ricky Rubio and Alec Burks...