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A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed
Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...
Evening of HOPE – Hosted by Recursion in honor of Rare Disease Day
Watch our “Evening of HOPE” for Utah Rare Disease Day 2026! It’s our fourth annual event, hosted by Recursion Pharmaceuticals in partnership with the Rare & Undiagnosed Network...
RUN’s NBA Initiative: Utah Jazz & Governor Cox Honored Rare Disease Day, RUN & Utah RDAC
Thank you to the Utah Jazz and Governor Cox for honoring Rare Disease Day and the work of the Rare and Undiagnosed Network (RUN) and the Utah Rare...
Utah Jazz to Honor Rare Disease Day with Governor Cox and First Lady Cox
Pregame ceremony to recognize the Rare and Undiagnosed Network (RUN) and the Utah Rare Disease Advisory Council (RDAC) ** Media interested in interviews and access should contact Cassie...
Governor Spencer J. Cox’s Declaration of Utah Rare Disease Day on February 28th, 2026
Thank you to Governor Spencer J. Cox for making Utah Rare Disease Day official again this Saturday, February 28th! It is a day dedicated to raising awareness about...
RARE Revolution Magazine: Undiagnosed.
UNDIAGNOSED. “They shine brightly despite their complex medical issues that affect them on a cellular level minute to minute, hour by hour, day by day. They still live...
“Evening of HOPE” agenda out now for our Utah Rare Disease Day event on March 3rd, 2026!
“Evening of HOPE” agenda for our Utah Rare Disease Day event! Please join us on Tuesday, March 3rd, for our fourth annual event, hosted by Recursion Pharmaceuticals in...
Celebrating our Undiagnosed Rare Disease Awareness Ribbon – created by Ava Szajnuk & designed by Erica Braymen in 2016
Undiagnosed Rare Disease Awareness Ribbon (2016): RUN’s first #UndiagnosedDay was on April 29th, 2016! We created the Undiagnosed Awareness ribbon from Ava Szajnuk’s drawing. Ava was eight years...
Update: UNDIAGNOSED IS OUR DIAGNOSIS: Living in a Diagnostic Odyssey x 4
By Gina Zanik (Szajnuk) My children: Ava, Oskar, and Lucy have been undiagnosed for the past 14 years as of the end of 2024. All three children and...
“An Evening of Hope” – Utah Rare Disease Day 2025 video – hosted by Recursion
Recursion’s “Evening of Hope” – Utah Rare Disease Day 2025 video! A special thank you again to all of our incredible speakers for being there this year to...
April 29th is Undiagnosed Rare Disease Day 2025!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...