Archive for October, 2015
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UTAH RARE DISEASE DAY 2016 is February 27th & February 29th. Planning has started! Join UtahRare.org
UTAH RARE DISEASE DAY 2016 is coming soon! February 27th & 29th!! Please share and “Like” the Utah Rare Facebook Page to find out more information about our upcoming events!...
Please help the RARE COMMUNITY by Asking Senator Hatch to Lead the Formation of a Rare Disease Caucus
Please use this LINK: Ask Senator Hatch to Lead the Formation of a Rare Disease Caucus Link: Senator Hatch’s website for more information about the Senator Dear Senator...
Angel Benson, Miss Iron County, bought Ava Szajnuk’s drawing at the Art For Angels event by Aware of Angels, Season Atwater!
Angel Benson: I am completely in love with this piece I got at the Aware of Angels Art for Angels show last weekend. It was drawn by an...
Harlie Valdez at Physical Therapy Yesterday! So Proud of you!
Help for Harlie Harlie is currently in treatment today at Primary Children’s Hospital We are thinking of you! Sending love and prayers! And, I love the Jazz pic!
Ciara Webster’s update: Congrats to Matt Webster! And, thank you to Harlie Valdez and her family!
Help for Harlie: Ciara Webster: Update on my crazy life…. I had my first 2 day steroid infusion treatment last week. 1,000 MG for 2 consecutive days.. It...
Lucy Szajnuk spent the night at the ER. The dog that attacked her was released today and slept in his own bed.
Update: A lightbulb just went off in my head tonight as I watched the sunset from the beach. And, yes…it helped to get out of my hotel room...
Lucy Szajnuk: In the ER at Primary Children’s Hospital. Please Pray.
Lucy was sent home from school today because she complained that her entire body hurt. When she got home her fever wasn’t very high. However, she continued to...
To Global Genes: Thank you for your 2015 RARE Patient Advocacy Summit
Dear Global Genes – Nicole Boice, Carrie Ostrea and your entire team, Words cannot express what an honor it was to receive a travel scholarship to attend your...
Melissa Nearman shares her journey with Dysautonomia
My name is Melissa and I’m 26 years old. I always planned on working in the medical field and having a huge family. I’m really excited that this...
Aware of Angels: Art for Angels- Art Contest & Silent Auction happening now through Saturday, October 3rd, 2015 at 10:00p MST
Please support the Art For Angels-Art Contest & Silent Auction Happening Now! Art Contest Art for Angels- Art Contest & Silent Auction. We are so excited for this...