2018 Utah Rare: RARE ANGELS Tribute

January 11, 2018 12:06 am No Comments 11

We are creating a RARE ANGELS Tribute for our upcoming Utah Rare event on March 3rd. If you have a RARE ANGEL in your family or know of someone that has lost a child to a rare or undiagnosed disease, please ask them if they would be willing to share a photograph and a written summary about their RARE ANGEL. We want to honor their lives and share their journey. If you want to be a part of the RARE ANGELS Tribute, please email a photo and a summary of your child to [email protected]
Charlee Marcella Nelson passed away from Late Infantile Batten Disease on March 15, 2014.
She passed away only two and a half months after turning six years old.
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