Charlee continues to guide RUN’s mission and has been such an inspiration to our family. She touched our hearts forever when we celebrated her one year Angelversary on March 15th, 2015.

We share in the joy of the Utah Jazz together.

We share in the heartbreak together.

Thank you to both Catrina and Jeff for your friendship, your love and your unwavering support of our family and RUN’s Mission.

Thank you, Nelson family, for being a pillar of strength for our family. I truly believe that Charlee brought our two families together for a reason. You are forever our family.

Much love, Gina

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ABOUT RUN

RUN stands for the Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

Contact information:
Gina Szajnuk (Zanik)
Co-founder and Executive Director
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey

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