RUN Day Without Doctors hosted by the National Ability Center tomorrow!
We are looking forward to a great time at the National Ability Center (NAC) tomorrow!
RUN Day Without Doctors!
September 12th:
If you are attending, please arrive at 1:30p at the
National Ability Center:
Phone:(435) 649-3991.
The event will run until 5:00p. There will only be light snacks available.
The event was donated by the National Ability Center. The cost of the event tomorrow is over $5,000. Since RUN is still without funding, they are not charging us. This is an opportunity for the NAC to meet the rare families living here in Utah. They wanted to share what they have to offer to the families! I feel blessed to have met them and I look forward to all of you meeting them!
The link below is to the newsletter that the Executive Director, Gail Loveland, wrote after she met us a few months ago: Gail – Thank you for your kind words and your generous gift tomorrow!
Jeremy Housekeeper and Kelley Fitzpatrick – Thank you for your hard work and this very blessed opportunity!
Thank you for joining us! I’m so excited for everyone to meet! Thank you all for sharing your stories on RUN and being there for our family.
If you can donate to the NAC, they would be very appreciative! Also, if you or someone in your family is not feeling well, please know that we understand! We are all living with rare and undiagnosed and we realize that we never know what tomorrow will bring!
I wanted to let you all know that Crystal Shearman and Nicholas Miller of the feature film, Undiagnosed: Medical Refugees, are donating their time and expertise to film the event! Thank you both!! Means more than you know! Thank you for all of the meals you delivered to our family over the winter when I wasn’t feeling well. Your friends and family are absolutely amazing. 
Thank you all! Cindylee Shearman, David Morris, Sharon Anderson Morris, Matt Sincell!Thank you to Sweet Country in Draper for donating baked goods!
See you tomorrow! Happy tears!
Megan – Thank you for all of your hard work on RUN. I could not be doing this without all of your help!
PJ, Peter and Marki – The three of you have changed RUN forever. Thank you for all of your time, support and hours of hard work!
Reid and Josh – Thank you for your continued support of RUN and our family!
Much love,
Gina