Help for Harlie:  Ciara Webster: Update on my crazy life…. I had my first 2 day steroid infusion treatment last week. 1,000 MG for 2 consecutive days.. It was really hard on my body but helped ease a lot of my pain and stiffness. The couple days to follow were pretty rough. I had EXTREMELY high blood sugars and fatigue. It was no fun but I feel better than I have in months. I see my doctor on Thursday to see how many more treatments he wants to go with and see if the treatment helped slow the progression down. Work has been pretty busy, month end is always busy for me but I love it. It helps keep my mind busy. Matt had his last race Saturday night. He was fast qualifier, 1st place in his heat race and 1st place in the main event. He was also crowned Champion tonight. This is his 4th championship. This race season was different than every other season; it was special to him, our family and our race team. Matt has raced and dedicated this entire season for Harlie Valdez. Every race, before putting his helmet on, my daughter and I always give him good wishes… his response back to us was always “I’m pushing as hard as I can for our girl Harlie, she’s a fighter, and she keeps me fighting”.

After Matt’s first race this season, we had the opportunity to take his trophy to Harlie. During this trip, Matt made Harlie a promise. He promised her she could design his racecar for next year any way she wanted. (Good thing Matt and Harlie have the same favorite colors haha). We are looking forward to next year, the new racecar design, but most importantly our friendship with Harlie and the Valdez Family.

Being rare and undiagnosed seems so dark and lonely but having another family that understands and can relate is the light on such a dark situation. We love and cherish the relationship we have built with such an amazing family.