I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone through without having a surgery since eighth grade. After my last surgery I promised myself that no matter how much pain I was in, I was NOT going to have a surgery. I was going to get through my senior year in high school just like a normal girl. I was determined to focus on graduating and enjoy my senior year as much as I could.

Don’t get me wrong, I still couldn’t attend every day at school, there were days that I went to school limping, there were days that I went to school after being up all night in pain. I still have bad days and really bad days. However I have really good days, days that I go run (more like walk) a mile at the gym with my boyfriend, there are days when I can go hiking and vacuum my room without a problem. There are days that I am laughing my head off, and other days when I’m crying on my boyfriend’s shoulder in pain.

Today, I am so proud of myself and how far I have came. While attending Valley High School, I have been on the honor roll every quarter. I have read more books than I have ever read in my life. I have started working for a wonderful company and have even been working out with my boyfriend regularly. I am so grateful that I am able to do the things I can do now and I try not to take advantage of it as much as I can.

I have been having a lot of pain on my right knee/upper calf. I do unfortunately plan on having surgery at the end of the summer to get it removed. I am trying really hard to postpone it as much as possible, lol.

I am really happy where I am in my life at this moment, I have such an amazing support team, including my sister, my boyfriend and his family, as well as the rest of my family.  I know that I will always be able to count on them. I never would’ve guessed I would be at the point of my life where I am today.

I hope everyone understands that even though there are bad days in life there are also good days. Enjoy the good days, cherish them. For one day, it might take over a year to see a good day again.

I want everyone to know, I would love to talk to anyone who is going through something similar to what I went to, or so much worst than I did, that if you ever need somebody to talk to or need anything please feel free to email me. I would love to help you in any way that you can. I love my RUN/Rare family and wouldn’t change anything about any one of you. You are so beautiful and so perfect in every way.

Much love,

Katie Nuffer