RUN in the MEDIA

 LINKS 

Rare & Undiagnosed Network Provides Advocacy, Networking and Support for Patients and Families

Utah Rare Disease Day Recap 2023

Global Genes Patient Advocacy Summit 2022: Undiagnosed? Misdiagnosed? Issues Related to Obtaining a Genetic Diagnosis

RARE Cast by Global Genes: A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition

Compassion in Medicine: Why Caring Matters – Future of Personal Health

#RUN2U 2019: Unique Challenges of Living with a Rare or Undiagnosed Disease

FDNA.com: Moms on a Mission for Rare Disease Advocacy (Part 1)

MediaPlanet: The NBA Pairs up with a Grassroots Nonprofit for Rare Diseases

Fox 13: Utahns Raise Awareness for Rare,Undiagnosed Diseases

RUN’s #RUNNBA: Utah Jazz National Anthem Buddies

Mediaplanet’s Rare Disease Campaign in the USA TODAY:  “Undiagnosed” Persists as an Ominous Diagnosis for Rare Disease Patients by Gina Szajnuk

RARE Daily by Global Genes: Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network

Livestream of Ava Szajnuk’s Speech at the Utah State Capitol!

Small Forces video: RARE AND UNDIAGNOSED NETWORK: RUN, DON’T WALK 

KJZZ story of  RUN

Park Record Shares about the Szajnuk’s Journey and our 2018 Upcoming Events

Patient Worthy Shares RUN’s Upcoming 2018 Events

Julie Potter’s story in The Leader

Aliyah Peedle’s story in The Leader 

Sugar House City Journal: Children with rare diseases enjoy Utah Jazz game

Rachel Nielsen’s story in The Leader

RUN on the NBA Milwaukee Bucks Jumbotron

Sense About Science USA: All Trials USA Blog about The Szajnuk’s Journey

EGL Genetics Blog: The Rare & Undiagnosed Family 

RUN video to promote MyGene2

The Mighty: “To the Person Who Left Me a Rude Note After I Parked in a Handicapped Spot” by Gina Szajnuk

The Mighty Rare Disease’s Live Stream of Gina Szajnuk

Rare Disease Report Interview of Gina Szajnuk  

Global Genes 2016 Summit: Gina’s Speech on Utah Rare

Andrew Scholte’s link about Running for the Szajnuk’s family 

Gina Szajnuk’s blog about RUN for The Mighty  

RUNmyDNA’s first article in the American Journal of Medical Genetics – Part A 

The Szajnuk’s story in the Park Record in Park City, UT

Gina Szajnuk, Cristina Might and Julie Potter on ABC’s Midday program for Utah Rare 

The Szajnuk’s FOX 13 News Interview for Undiagnosed Day

The Szajnuk’s Journey on Global Genes  

KSL Interview of Harle Valdez and her family 

Deseret News Article on Rare Disease Day

NBA Article on Hosting our Utah Rare Children on the court

Daily Herald Article about Rare Disease Day

Deseret News about rare kids on the court of the NBA Utah Jazz

Gina Szajnuk’s letter to Senator Hatch published in the Salt Lake Tribune  

Gina Szajnuk’s letter to Senator Hatch published in the Deseret News

Gina Szajnuk on Rare Cast about Rare Disease Day 

Undiagnosed Day Without Doctors Video at the National Ability Center

#UndiagnosedDay Social Media Campaign and RUN Video

RUN Video with Rachel Platten

NORD’s Announcement about their Rare Action Network and Gina Szajnuk as their Utah State Ambassador

Tute Genomics and Josh  Forsythe’s No Child Left Undiagnosed Manifesto

Grayson McClure’s Journey in the Review Journal

National Ability Center’s Newsletter: From the Desk of the Executive Director

Rare Angel, Charlee Nelson, remembered on FOX13 News 

Mark Huffman’s Blog about Wearable Devices

KSL.COM video on the Szajnuk family  

Global Genes Blog about the Szajnuk family

Szajnuk (Zanik) Family Whole Genome Sequencing Mission

Salt Lake Tribune article on Ava and our family moving to Salt Lake City and the Utah Jazz

Justin Zanik’s Bucks Announcement with the Milwaukee Bucks in the Wisconsin State Journal

Justin Zanik’s Bucks Announcement about joining the Milwaukee Bucks at Yahoo Sports

Jazz News: 30 Rare Children Tonight Game 2015

Utah Jazz Announcement about Justin Zanik joining as Assistant General Manager