Join us at the BioHive Utah Live 2025 event on February 20th

February 11, 2025 8:00 am No Comments 0

We are honored to share our journey at the upcoming BioHive Utah Live 2025 event. Our oldest daughter, Ava, will be joining us as well. We are excited to hear all of the amazing speakers. A special thank you to Aimee Edwards for this blessed opportunity for our family.

BioHive Live 2025 Speaker Spotlight: Gina & Justin Zanik

Join us on February 20, 2025, for an inspiring and deeply personal session with Gina and Justin Zanik, passionate advocates navigating the realities of rare diseases and complex health challenges.

Through their journey, you’ll see firsthand how medical breakthroughs are not just providing hope—they’re reshaping the future of personalized healthcare. Their resilience and determination offer powerful insights into the evolving landscape of treatment and innovation.

📍 Learn more: biohivelive.com

🎫 Register now: https://lu.ma/ia8pvugp


Contact information: 

Gina Zanik(Szajnuk)
Co-founder and Executive Director, Rare and Undiagnosed Network (RUN)

Vice Chair, Utah Rare Disease Day Council (RDAC)

www.rareundiagnosed.org 

ginaszajnuk@gmail.com

P (310) 883-4353


To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed – by Lee Benson 

To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk

To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk

To Read: The Szajnuk Journey 

To Read: “Push Through” by Ava Szajnuk 

To Listen: RARE Cast by Global Genes“A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”

RUN’s GuideStar Profile

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