Archive for the ‘Aliyah Peedle’ Category
We are not defined by “VACTERL Assoc., Gastroparesis, Chronic Lung Disease” by Amy Sue Peedle
Even though Aliyah is very sick. We are strong together. Aliyah is a fighter. I am a fighter. She will persevere. I will persevere. We are so very blessed. We...
Aliyah Peedle Update: VACTERL Assoc., Gastroparesis, Chronic Lung Disease
Amy Peedle updates us on her daughter: Aliyah will be getting both her tubes changed out tomorrow. They are due to be changed in June but because we...
Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families
Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
Aliyah-VACTERL Assoc., Gastroparesis, Chronic Lung Disease
Aliyah is 14 when she was born she weighed 3lb 10oz. She has the VCTE of the VACTERL Association (V) = vertebral abnormalities (A) = anal atresia (C)...