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October 2, 2016 9:31 pm
3Today was a good day. It was a really good day. It is one of those days that I will never forget. Ava, Oskar, Lucy and I stepped...
September 25, 2016 9:04 pm
8“Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts in rare disease advocacy, science, collaborative...
September 24, 2016 9:24 pm
0May 13, 2016 5:27 pm
9May, 2016 Dear Mom, Happy Mother’s Day! Thank you for teaching me the Golden Rule, “One should treat others as one would like others to treat oneself.” Thank...
January 17, 2016 4:02 pm
5Gina Zanik (Szajnuk) started her career in the entertainment industry. She worked in Hollywood for over ten years. She supported movie directors, producers, actors, literary agents and executives....
August 13, 2014 4:18 pm
142017 Update: The Szajnuk’s Diagnostic Odyssey Written in July 2014: To Whom It May Concern: I am a mother of three young children, and all three have been diagnosed...