Archive for the ‘Katie Maguire’ Category
Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families
Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
Katie-Cutaneous Mastocytosis
Katie-15 years old Diagnosis-Mastocytosis Country-USA My name is Katie. I am 15 ½ years old and I live in Utah. I have a rare disease called Mastocytosis. I was...