Archive for the ‘Rare and Undiagnosed Network’ Category

Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family

May 27, 2018 10:29 am

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Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...

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RUN wins RareVoice Award from the EveryLife Foundation for Rare Diseases

November 17, 2016 8:36 pm

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Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...

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