Archive for the ‘RUN Family’ Category
Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family
Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
Watch #RUNNBA: Utah Jazz National Anthem Buddies
RUN’s #RUNNBA: Utah Jazz National Anthem Buddies Watch our #RUNNBA video and experience what it was like to be on the court of the Utah Jazz! In 2015,...
RUN’s 2018 Rare Disease Day!
RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...
“RUN Family Changed My Life” by Gina Szajnuk
It has been an emotional few days this week with my trip back to Salt Lake City for the NBA Utah Jazz game against our Milwaukee Bucks. I...