Archive for the ‘Szajnuk Family’ Category
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Ava Szajnuk’s Sixth-Year Anniversary: Second Chance at Life
June 15th marks Ava’s sixth-year anniversary of her first cranial surgery during the summer of 2013. Today, also marks the first day I started to share our journey...
Announcement: Exciting News for our Family!
Our family is incredibly grateful to the Miller family, Steve Starks, Dennis Lindsey, Quin Snyder and the entire Utah Jazz organization for this very blessed opportunity for our...
“Undiagnosed is a Diagnosis” by Gina and Ava Szajnuk
Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...
Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family
Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
Watch #RUNNBA: Utah Jazz National Anthem Buddies
RUN’s #RUNNBA: Utah Jazz National Anthem Buddies Watch our #RUNNBA video and experience what it was like to be on the court of the Utah Jazz! In 2015,...
RUN’s 2018 Rare Disease Day!
RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...
Wishing you a Safe and Healthy 2018!
As 2017 comes to an end, we want to wish you all a safe and healthy 2018! Thank you to all of our RUN families for continuing to...
A Dream Come True! The Szajnuks meet Rachel Platten
We are all a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...
RUN’s Journey
My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
Happy New Year to my RUN family
Happy New Year’s Day to all of our family and friends. I went back through our 2016 pictures and landed on this picture this morning. As we are...