Archive for the ‘Undiagnosed Alliance’ Category

Undiagnosed Rare Disease Day is April 29, 2019!

February 20, 2019 12:00 pm

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Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah!  What...

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Utah: Rare Disease Day & Undiagnosed Rare Disease Day

February 1, 2018 12:04 pm

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Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...

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The Undiagnosed Alliance: Mission and Goals

April 6, 2017 9:49 am

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The Undiagnosed Alliance (the Alliance) is a coalition of undiagnosed rare disease stakeholders coming together with the purpose to foster unified advocacy among patient organizations, individuals, and stakeholders...

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Undiagnosed Alliance Flyers

April 18, 2016 2:30 am

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Dear Undiagnosed Alliance, Please find the Undiagnosed Day flyer! Thank you all for your continued support of the Undiagnosed Alliance. I had several more organizations email me to...

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