The rare community is amazing! I have had the honor of working on the Executive Committee for Utah Rare. Check out UtahRare.org 🙂 The group of people putting this on next week are amazing!

I watched my three children play with other rare children the other day when we met Noah Coughlan with Run for Rare. https://www.run4rare.org/journey/ Please check him out. What an honor to meet him!

As I looked around the room, I watched the mothers bond. I watched the children bond. This was my dream!

We not only have our friends and family as our support group, we now have our rare and undiagnosed families as support. This is what my dream was when Reid, Justin and I started RUN. We wanted to bring together families. The Utah Rare events next week have brought me closer to so many more families. I want to help them all! I want to support them all! We are all in this together. Much, much love!