Gina

I hope you and the family have comfortably settled in and are enjoying the cooler Wisconsin weather.  Now that basketball season and school is in full swing, your household schedule must be busier than ever.  The family looked so happy in the picture on Facebook celebrating Justin’s birthday at the Milwaukee Bucks game, enjoying family life together. Give everyone a hug for me; I miss all of you so much.

The articles posted on Facebook keep me up to date on RUN, the progress being made in the field of genetics and the Utah families.  Sometimes, it seems that everything is moving forward in warp speed towards finding the answers for so many in the community – then – reality strikes and there is sadness of another setback or loss.  I am in awe of the strength of these families who need to hold on to the hope of finding answers in time to comfort and save their loved ones then having yet another door slammed in their face.

Your strength has always amazed me.  While dealing with your own personal difficulties along with those affecting your beautiful children, you were able to take on the fight for everyone else as well.  RUN brought together those who had felt as though they were alone to create a family who could support one another and learn from one another how to traverse the difficult journey ahead.  There is strength in numbers.

The impact of your presence at the University of Utah Hospital and Primary Children’s Hospital certainly made a difference for so many of the families in the Utah Rare and Undiagnosed community.  When someone can create such an awareness within an insulated medical community that it effects changes within the structure of services of that business community, it is time for everyone to take notice.  Your presence and efforts here in Salt Lake City has made a difference in so many lives and those lives yet to be born.

Your success was monumental in making the University of Utah Hospital and Primary Children’s Hospital acknowledge the lack of services and compassion provided to a section of people in the area without a voice then to make the necessary changes.  Hopefully, this will effect changes in the way upcoming medical students are taught as well as how the business administration world views the purpose of medical professionals.  In the modern world, everything has been reduced to the almighty bottom dollar and how each transaction will impact personal profit.

It is time for change!  Now, are you ready to take on the insurance world?

Love you,

Doris