Rare & Undiagnosed Network

March 5, 2018 12:21 am 1 Comment 10

Our Fourth Annual Utah Rare Symposium was a huge success this past weekend! Thank you to our 2018 Utah Rare Chair, Tristin West! Thank you to all of our sponsors and to Mark Kristensen of Angel’s Hands Foundation for handling the sponsorships for us this year! Thank you to our Utah Rare Executive Team and to all of our volunteers! It was such an educational and inspiring day! It was also an emotional day to see all of our families again and to meet so many new families. Thank you to everyone that attended and to everyone that hosted a table. Thank you to all of our speakers and to the Marriott for taking such great care of us! Thank you to Anne Bruns for rocking the behind-the-scenes all year! Thank you to Season Atwater of Aware of Angels for her incredible Utah Rare Photography Project. It was an honor for our family and for RUN to be a part of the Utah Rare Symposium on March 3rd! Please scroll through for the livestream links from the symposium and for our resource flyer! Please also scroll to see all of the inspirational pictures from Season’s Photography Project. We included some of the many fun pictures from the event too!

We missed our Utah Rare Founder, Cristina Might. She would have been so #UtahRare proud!

We are already looking forward to our Fifth Utah Rare Symposium and some fun announcements are coming soon!

Visit Utah Rare’s Facebook page!

Visit UtahRare.org and explore the incredible Utah Rare Photography Project directly on the site or click on their names below to read their journeys! Utah Rare’s website is donated by www.ecosyse.com

Thank you for your continued support, love and prayers!

Much love,

Gina